Sunday, September 28, 2014

Post Op Day 5

Keller is 4 months old today!
Today was a better day. Keller was resting when I was able to get to him this morning.  He is still having periods of extreme crankiness.  He will wake up from sleeping and scream in pain.  It takes several minutes to get him calm.  The docs want to make sure that there is no underlying problem in his brain that could be causing irritability.  They ordered an EEG and a MRI.  The EEG is being done as I type.  The MRI will be done in the morning because it's hard to get them done on a weekend.  When I told them about the cyst that was found on CT they were even more compelled to do the MRI.  Hopefully the tests will show nothing and the answer will be that our boy is just really feisty. We are glad, though, that the MRI is going to be done while we are here and we won't have to go through another admission or hospital stay for a sedated MRI.  They are going to do their best not to intubate him tomorrow for the MRI and just use some sedation meds and pain meds to keep him still enough.  In other news his oxygen is off as of this evening as well as monitor that was on his forehead.  I feel that some of his crankiness is pain from the remaining lines and from his chest incision.  His gas pains are no joke either but today they hooked up his feedings through a bag that will allow food in and air out.  There has been a marked difference since that was done.

Sorry to those that are getting tired of seeing my family on your feed, we are hoping to be done with all of this soon too.  Thank you to those that are continuing to pray for us.  We are excited for the day that there is no news.  



8 comments:

  1. We love you guys so much and you being on our news feed by so many shares is indicative of how loved you are, how many people want others to pray for healing for Keller, and how we know we serve an awesome God who will makes all things new.💚

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  2. what good news! a day of little news is a good day. I am sorry Keller is waking up in so much pain . . . it must be really hard on you also. I am sending you loving hugs . . . wish I could give them in person. may God's peace just settle around you, comfort you, strengthen you, encourage you, and let you know you are loved, loved by One who cries w/you, rejoices w/you . . . who walks this journey w/you, never backing off from you no matter your mood or feelings or . . . (fill in the blank), never judge you (He paid the fine :-) ), never condemn you. it amazes me that God can KNOW me, in and out, and He still loves me and never leaves me. and that lets me face each day. rest in Him even as you care for Keller, Nora, and Phillip. He lets our prayers undergird you and carry you. May He let you be oh so aware and take comfort. knowing He is strong when we are weak, is very different from living it -- but then you KNOW it is true and so God grows our faith even as He walks w/us (carries us, if need be) on our journey. love you all and keeping you in my prayers.

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  3. We will always be your fan club.....I always am looking for news about Keller. We have adopted you all in our hearts!!!!! Keep those posts coming.....please! Betty Jo and Kenny

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  4. Absolutely no need for apologies! Thank you so much for the updates! Continuing to pray! Love and hugs...

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  5. Appreciate your posts so we can see God's answer to our prayers! Praying continually, Laurie, friend of Matt & Becky

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  6. Never tired of seeing you in my feed!! Love you guys and praying for you all!!

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  7. Never tired of seeing you in my news feed keep posting Praying

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  8. Love and prayers to each and everyone one of you♡♡♡

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